1) You give 1 anecdotal example, and in turn suggest that somehow that means the British have always been conservative? I remind you that it is almost a FULL CENTURY since the incident you mentioned and both medicine and medical sciences have made signficiant strides across all countries. Please provide some more recent examples
2) The whole point here is that this “medicine” offered in the US is not even in experimental stages… It has been tested in a different group of people but to date has not been experimented in the population with Charlie Gard’s mutation — hence there’s no evidence that it would actually work, unlike the insulin case you brought up.
early 13c., "apparatus for weighing," from Old French balance (12c.) "balance, scales for weighing," also in the figurative sense; from Medieval Latin bilancia , from Late Latin bilanx , from Latin (libra) bilanx "(scale) having two pans," possibly from Latin bis "twice" + lanx "dish, plate, scale of a balance." The accounting sense is from 1580s; the meaning "general harmony between parts" is from 1732; sense of "physical equipoise" is from 1660s. Balance of power in the geopolitical sense is from 1701. Many figurative uses are from Middle English image of the scales in the hands of personified Justice, Fortune, Fate, etc.; . hang in the balance (late 14c.).
"Data elements" refers to the exact data that will be collected. Currently there are few, if any, broadly accepted sets of standard data elements for most disease areas, making it difficult to use external data as a source of comparison data. Look to the specialty societies to see if they have created clinical data standards that you can use as a guide for selecting data for collection. For example, the American College of Cardiology has created clinical data standards for acute coronary syndromes, heart failure, and atrial fibrillation. 5. Registries, p53. Whenever possible, tie your data elements to established terminology, such as Current Procedural Terminology (CPT) codes, International Classification of Disease (ICD-10), or events related to device deficiencies. 6. ISO 19218-1.